Published by the Ohio Developmental Disabilities Council to bring disability issues and accomplishments to the attention of Ohioans. Quarterly Special Edition - Early Intervention - November 2011 Published by the Ohio Developmental Disabilities Council to bring disability issues and accomplishments to the attention of Ohioans. Quarterly Special Edition - Early Intervention - November 2011 This special edition of the DD Quarterly provides an overview of early intervention services based on changes made to the Part C regulations. Ohio Legal Rights Service supervising attorney Kristin Hildebrant, staff attorney Kristen Henry and disability rights advocate Earnestine Hargett contributed the content for this special edition. Revised regulations were published for Part C of The Individuals with Disabilities Education Improvement Act (IDEA), the portion of the IDEA that provides early intervention services to infants and toddlers (age birth through 2) with disabilities. The revised Part C regulations were published in the Federal Register (34 CFR Part 303) on September 28, 2011 and went into effect on October 28, 2011. Major themes have been addressed by the changes. These include making the Part C regulations more compatible with the language of the regulations in Part B of the IDEA and regulations included in the Elementary and Secondary Education Act (ESEA) and the Family Education Rights and Privacy Act (FERPA).Changes have occurred in the areas of confidentiality, procedural safeguards, parent/guardian definition, payment for services and the definition of scientifically based research. Part C Provisions Part C provides financial assistance to states to provide services to infants and toddlers with disabilities. Early intervention services are targeted to increase the capacity of families to care for their children with disabilities and are provided through a coordinated network of service providers. The services are driven by the needs of the family and the child and are documented through an Individualized Family Service Plan (IFSP). Unlike Part B of the IDEA which covers children ages 3 through 21 and entitles children with disabilities to a free and appropriate public education (FAPE), Part C early intervention services are not required to provide a FAPE. Instead, the purpose of these services is to enhance the development of infants and toddlers with disabilities and to minimize developmental delay. The ultimate goal of the program is to maximize the child’s potential for independent living as an adult. Part C Lead Agency in Ohio The state Department of Health, Bureau of Early Intervention Services, is the lead agency to administer the Part C Early Intervention program in Ohio. The program is part of Help Me Grow, a program that promotes the wellbeing of young children through home-based and specialized services, with an emphasis on early intervention and prevention. Part C Early Intervention ODDC Mission It is the mission of the Ohio Developmental Disabilities Council to create change that improves independence, productivity and inclusion in community life for people with disabilities and their families. Child Find Child Find The law has always required the lead agency to develop an effective way of finding and evaluating children who might be in need of early intervention. This is called Child Find. However, the new regulations provide more specificity regarding the requirements for collaboration and outreach involving multiple agencies and programs and establish the framework for these enhanced Child Find activities. The framework involves three prongs: (1) pre-referral through public awareness and Child Find, (2) referral and (3) post-referral (screening, evaluation and the initial IFSP meeting). The lead agency must coordinate its Child Find efforts with the: • State agency responsible for administering the Child Abuse Prevention and Treatment Act; • Early Hearing Detection and Intervention system; • Home Visiting Program under Maternal and Child Health; • Children’s Health Insurance Program; • Child care programs; • Head Start, including Early Head Start; and • Social Security’s Supplemental Security Income program. Referral Referral The law has always required a process for referring children to Part C services. Prior to the recent changes, referral was required within two business days. The law has changed to extend the referral timeline to no later than seven days after identifying that a child might be in need of services. The timeline was extended to provide more flexibility to primary referral sources. In addition to the agencies listed above, local agencies such as county boards of developmental disabilities, county departments of health, child care providers and preschools are partners in the referral process. New Optional Screening New Optional Screening The regulations contain a new optional screening process which allows states the option to include screening as a part of the referral process. The purpose of the screen is to determine whether further evaluations and assessments are necessary to establish if a child is eligible for services. If a lead agency chooses the screening option, it must provide the parent with prior written notice of its intent to screen the child and obtain parental consent before administering the screening. The notice must explain the parents’ right to request an evaluation at any time during the screening process. Once the screening is completed, the lead agency must provide notice of the screening results to the parents, and, if the screening results indicate that the child is suspected of having a disability, the lead agency must conduct an evaluation after obtaining parental consent. If the screening results indicate that the child is not suspected of having a disability, the lead agency or early intervention service provider must ensure that notice of that determination is provided to the parent. The notice must include the parents’ right to request an evaluation at any time during the screening process, even if the screening suggests that the child is not suspected of having a disability. Regardless of whether the state chooses the screening option, within 45 days after the lead agency or early intervention service provider receives a referral, the child’s initial evaluation and initial assessments must be completed unless: • the child is unavailable due to family circumstances; or • the parent has not provided consent for the referral activities after repeated attempts by the early intervention service provider to obtain it. Either of these circumstances must be documented in the child’s early intervention record. DD Quarterly Special Edition - Early Intervention - November 2011 Eligibility Evaluation Eligibility Evaluation The law has always required the lead agency to ensure a timely, comprehensive multidisciplinary evaluation to establish eligibility and the regulations contain no changes to this process. Eligibility can be established without an evaluation of the child through a child’s medical records if the records document functional deficits in one or more developmental areas or a condition that has a high probability of resulting in a developmental delay. If medical records are used to establish eligibility, the agency must still conduct an assessment of the child and family to determine the need for services. Informed clinical opinion must be used when conducting an evaluation and assessment of a child. It may be used as an independent basis to establish eligibility even when other evaluation instruments do not establish eligibility. However, an informed clinical opinion may not be used to negate the results of an evaluation instrument which confirm eligibility. Only children who meet the definition of an infant or toddler with a disability under the regulations are entitled to early intervention services. Improving the lives of Ohioans with disabilities The Ohio Developmental Disabilities Council is a group of 35 people, appointed by the governor, who plan and advocate for Ohioans with disabilities. ODDC receives federal funds and distributes those funds by awarding grants for projects and activities that create visions, influence public policy, pilot new approaches, empower individuals and families, and advocate system change. 899 East Broad Street Suite 203 Columbus, OH 43205 Voice: (614) 466-5205 (800) 766-7426 (Toll free in Ohio) TTY: (614) 644-5530 Fax: (614) 466-0298 www.ddc.ohio.gov DD Quarterly Special Edition - Early Intervention - November 2011 What’s required in an IFSP? What’s required in an IFSP? An Individualized Family Service Plan (IFSP) is a written plan for providing early intervention services to an infant or toddler with a disability. The IFSP is (1) based on the evaluation and assessment; (2) includes information about the child’s present levels of development, the family’s resources, priorities and concerns, measurable outcomes and specific services; (3) implemented as soon as possible once parental consent for the early intervention services in the IFSP is obtained; and (4) developed in accordance with the IFSP procedures. The Part C regulations specify the procedures that state lead agencies and early intervention service providers must follow to develop, review and revise an IFSP for each child. Each IFSP must include the following information: • The name of the service coordinator from the profession most immediately relevant to the child’s or family’s needs (or who is otherwise qualified to carry out all applicable responsibilities under Part C). The service coordinator is responsible for the implementation of the early intervention services identified in the IFSP, including transition services and coordination with other agencies and persons. The service coordinator serves as the single point of contact for families. • A statement of the child’s present levels of physical development (including vision, hearing, and health status), cognitive development, communication development, social or emotional development and adaptive development based on the information from the child’s evaluation and assessments. • With the agreement of the family, a statement of the family’s resources, priorities, and concerns related to enhancing the development of the child as identified through the assessment of the family. • A statement of the measurable results or measurable outcomes expected to be achieved for the child (including pre-literacy and language skills, as developmentally appropriate for the child) and family, and the criteria, procedures, and timelines used to determine: (1) The degree to which progress toward achieving the results or outcomes identified in the IFSP is being made; and (2) whether modifications or revisions of the expected results or outcomes, or early intervention services identified in the IFSP, are necessary. • A statement of the specific early intervention services, based on peer-reviewed research (to the extent practicable), that are necessary to meet the unique needs of the child and the family to achieve the results or outcomes identified above, including the beginning date, length, duration, frequency, intensity, method of delivering and location of the early intervention services. • A statement that each early intervention service is provided in the natural environment for that child to the maximum extent appropriate, or a justification as to why an early intervention service will not be provided in the natural environment. • For children who are at least three years of age, a statement of the educational component that promotes school readiness and incorporates pre-literacy, language and numeracy skills. • To the extent appropriate, with regard to medical and other services, identification of those services that the child and family needs or is receiving through other sources, but that are neither required nor funded under Part C.If those services are not currently being provided, a description is included of the steps the service coordinator or family may take to assist the child and family in securing those other services. • Payment arrangements and identification of potential funding sources. DD Quarterly Special Edition - Early Intervention - November 2011 Service Coordination Service Coordination Service coordination involves having a service coordinator work with the child and the child’s family to help maximize the use of resources from multiple service providers and systems to meet the individual needs of the child and family. A change in the new regulations states although a service coordinator is responsible for coordinating the funding sources for services, the service coordinator is no longer required to coordinate funding for other services identified in the IFSP that are not required to be provided under Part C. Other service coordination services remain the same in the regulations and include: • Coordinating evaluations and assessments; • Facilitating and participating in the development, review, and evaluation of IFSPs; • Assisting parents of infants and toddlers with disabilities in obtaining access to needed early intervention services and other services identified in the IFSP, including making referrals to providers and scheduling appointments; • Monitoring the delivery of services required to ensure that the services are provided in a timely manner; • Informing families of their rights and procedural safeguards; and • Facilitating the development of a transition plan to preschool, school or to other services. ansitionT TTr rransition The transition requirements in the new regulations have changed both in timelines and content. Transition services ensure that children continue to receive services and support as they move within and between service delivery systems. One such transition is when a child moves from early intervention services to preschool services. This occurs when the child nears the age of three and the services can include a transition to special education preschool programs under Part B of the IDEA, Head Start programs and public or private preschool programs. The new regulations change the timeline for transition planning to require that the transition plan be established at least 90 days prior to the child’s third birthday, or not more than 9 months before the child’s third birthday at the discretion of the team members. The new regulations require the meeting to be held in accordance with requirements for accessibility, convenience, consent and participation of all necessary parties. If a child is referred for early intervention services less than 45 days before his or her third birthday, an evaluation or assessment is not required for Part C, but the lead agency must still notify the state department of education and local school district if the child may be eligible for Part B preschool services for children with disabilities. The new regulations clarify that the transition plan is not a separate document and must be included in the IFSP. With approval from the family, the transition plan and the transition conference can take place at the same time as long as the meeting is conducted in accordance with the IFSP meeting and periodic review requirements. Service coordination must be provided to develop a transition plan for all infants and toddlers with disabilities leaving Part C regardless if they are suspected of eligibility for Part B. The content requirements have also changed to require the agency to notify parents of the agency’s intention to share information about the child and family with the state department of education and local school district as it DD Quarterly Special Edition - Early Intervention - November 2011 relates to the child’s potential eligibility for Part B services. The regulations allow states to adopt an opt-out policy that permits the parents to object to the disclosure of personally identifiable information about the child and family. When information for children who are potentially eligible for Part B services is shared with the local school district, the local school district must provide the parents with notice of their procedural safeguard rights. The new regulations state that the family of a toddler who is receiving services under Part C must be included in the development of the transition plan along with the lead agency and the local school district. If the child is not potentially eligible for Part B services and the family approves, reasonable efforts need to be made to hold a meeting with other appropriate service providers where the child and family may be served, such as Head Start or other preschool options. Procedural Safeguards Procedural Safeguards The requirements for minimum state complaint procedures have been changed to facilitate the voluntary resolution of complaints. More leeway has been provided in giving extensions of the complaint and due process timelines to encourage mediation. In addition, a complaint must allege a violation that occurred not more than one year prior to the date the complaint is received. The regulations continue to have extensive requirements for procedural safeguards to ensure that the rights of children and parents are protected and to create a system for resolving complaints. In general, those procedural safeguards include: Notice: The parents must receive prior written notice in their native language of any action proposed or refused by the early intervention provider. The notice must inform of the procedural safeguards that are available if the parents disagree with the action. Consent: The early intervention provider must obtain the parents’ consent before screening, evaluating, or assessing the child, providing services to the child or accessing insurance to pay for services to the child. Confidentiality: Personally identifiable information (for the child and family) must be kept confidential, and can only be released with the parents’ written consent. Access to the child’s record: Parents have the right to review their child’s records, or to have a representative review the records. If requested, the agency must provide the parents with one copy of the child’s records at no cost. The regulations also have dispute resolution procedures, including: Mediation: If the parents have a dispute, even if a complaint has not been filed, they and the early intervention provider may choose to participate in mediation. Mediation is a voluntary process conducted by an impartial mediator who facilitates discussion and settlement between the parties. State complaint: If the parents file a complaint, the state agency must investigate the complaint and issue a written decision within 60 days. If the decision is in the parents’ favor, it must include corrective action. Due process hearing: Parents may request a due process hearing, in which they present their complaint and evidence to an impartial hearing officer, who issues a written decision. If this process does not end in the parents’ favor, they can file a lawsuit in state or federal court. DD Quarterly Special Edition - Early Intervention - November 2011 ayment for EI Services P PPayment for EI Services The new regulations change the consent requirements for a child who is already enrolled in public health benefits like Medicaid. The early intervention service provider must now only obtain consent from the parents before billing services to public benefits, if the child or family will experience a loss or decrease of benefits, experience increased costs or risk the loss of the child’s eligibility for home and community based waivers. If a child is eligible for public benefits like Medicaid, but is not enrolled, the agency cannot require the child to enroll in order to receive services. The regulations continue to require the state to establish policies called a “system of payments” which set forth the payment system for early intervention services. Part of this system includes family fees or costs including direct payment for services through a schedule of sliding fees. The state has a responsibility for establishing the payment schedule and definitions for the ability and inability of a family to pay for services. The regulations state that the inability to pay shall not result in the delay or denial of Part C services. Part C is still considered the “payor of last resort,” for early intervention services, which means that all other sources of payment must be exhausted first. Other sources of payment may include private insurance, public insurance (Medicaid), local programs, private organizations and payments by families such as sliding fees, co-payments, premiums or deductibles. Early intervention service providers are not permitted to use a family’s private insurance as a funding source unless the parent provides written consent. Before providing consent, parents should consider whether billing services to their private insurance will impact annual or lifetime caps on coverage, the availability of insurance, and the cost of premiums under their insurance plan. If a parent consents to billing private or public insurance for services, and the parent is required to pay any co-payment or deductible, those costs must be considered in the state’s system of payments. If a parent does not provide consent to bill private or public insurance for services, the agency must continue to provide services that the parent has given consent for the child to receive. Looking Ahead Looking Ahead It is unclear whether Ohio will implement the non- mandatory provisions of the Part C regulatory changes e.g., the option to include screening as part of the referral process. Also, Ohio will have to review and revise its current early intervention policies to align with the required changes in the new regulations, including making the necessary changes regarding the use of public insurance to pay for early intervention services. It is not known how long this process will take. In addition, Ohio is currently examining its eligibility criteria for early intervention services, especially medical conditions which have a high probability of resulting in developmental delay. When the U.S. Department of Education released the new regulations, the agency also announced that due to the economic changes many states have experienced since the publication of the Notice of Proposed Rulemaking in May 2007, they will be seeking comment in 2012 on the issue of “maintenance of effort.” Currently, states are required to allocate for the current year’s funding at least the same amount of funding for early intervention services that was spent the previous year. Due to budget cuts, many states have asked the Department to change this requirement. DD Quarterly Special Edition - Early Intervention - November 2011 Improving the lives of Ohioans with disabilities DD Quarterly is produced by the Ohio Legal Rights Service. DD Quarterly can be viewed at www.ddc.ohio.gov or at www.olrs.ohio.gov To share your comments or suggestions, contact Kim McConnell at LRS: Voice: (614) 466-7264 (800) 282-9181 (Toll free in Ohio) TTY: (614) 728-2553 (800) 858-3542 (Toll free in Ohio) Fax: (614) 644-1888 Email: newsletter@olrs. state.oh.us Copyright © 2011 Content may be reprinted upon request. Early Invention Resourcesarly Invention Resources IDEA Infant & Toddler Coordinators Association 2011 Part C Regulations http://www.ideainfanttoddler.org/ regulations.htm Office of Special Education Programs Overview and Discussion of 2011 Part C Regulations http://osep-part-c.tadnet.org/materials Council for Exceptional Children Individuals with Disabilities Education Act Resources http://www.cec.sped.org/Content/ NavigationMenu/PolicyAdvocacy/ IDEAResources/default.htm The Division of Early Childhood IDEA Part C Changes http://www.dec-sped.org/ PolicyAdvocacy/IDEA_Part_C_Changes Ohio Department of Health Help Me Grow http://www.ohiohelpmegrow.org/ DD Quarterly Special Edition - Early Intervention - November 2011