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Executive Summary of State Plan Initiatives for 2004-2005

Ohio Developmental Disabilities Council

To request a copy of this booklet in an alternate format or a copy of the 2004 State Plan, please contact:

Ohio Developmental Disabilities Council
8 East Long Street, Suite 1200
Columbus, OH 43215
(800) 766-7426 voice
(614) 466-5205 voice
(614) 644-5530 tty
(614) 466-0298 fax
ddc.ohio.gov

To receive Council's newsletter, DD Quarterly, contact:

AXIS Center for Public Awareness
4550 Indianola Ave.
Columbus, OH 43214
(800) 231-2947 v/tty
(614) 262-8124, v/tty
(614) 267-4550, fax
axiscenter@aol.com

The Ohio Developmental Disabilities Council (ODDC)

is a planning and advocacy body committed to community inclusion of people with developmental disabilities. One of a network of state councils, ODDC receives federal funding through the Basic State Grant Program for advocacy, capacity building and systems change for people with developmental disabilities. State councils are encouraged to provide innovative activities that:

  • Assure that people with developmental disabilities receive services and other assistance and opportunities they need to achieve their maximum potential through increased independence, productivity, and integration into the community;
  • Advocate for public policy change, systems change, and community acceptance of all people with developmental disabilities and their families;
  • Promote inclusion, informed choice, and independence among all people with developmental disabilities including those with most severe disabilities and their community neighbors, coworkers, and friends;
  • Recognize the contributions of all people with developmental disabilities as they share their talents at home, school and work, and in recreation and leisure activities; and
  • Enhance the role of the family.

The Ohio Developmental Disabilities Council consists of 35 members appointed by the governor. Sixty percent of the members must be people with developmental disabilities, parents, guardians, or immediate relatives of people with developmental disabilities. Other members include representatives from concerned state agencies and nonprofit organizations, and local agencies providing services to people with developmental disabilities. The Ohio Department of Mental Retardation and Developmental Disabilities assists ODDC as designated state agency.

State Plan

Each state desiring to receive federal funds must submit a five-year state plan. The plan includes a comprehensive review and analysis of the extent to which services and supports are available for individuals with developmental disabilities and their families. It reflects Council’s plans for systematic change, capacity building, and advocacy activities to appropriately address the needs of people with developmental disabilities and their families.

Ohio’s plan addresses these areas of emphasis:

  • Education and Family Support
  • Health and Mental Health
  • Employment
  • Community Living and Housing
  • Self Advocacy
  • Community Inclusion

What is a developmental disability?

Approximately two out of every 100 Americans have a developmental disability. Based on the 2000 census, it’s estimated that more than 204,000 people with developmental disabilities live in Ohio.

The federal government and the state of Ohio define a developmental disability as a severe, chronic disability of an individual five years of age or older that:

  • Is attributable to a mental or physical impairment or combination of mental and physical impairments;
  • Is manifested before the person attains age 22;
  • Is likely to continue indefinitely;
  • Results in substantial limitation in three or more areas of major life activity:
  • - Self-care
    - Receptive and expressive language
    - Learning
    - Mobility
    - Self-direction
    - Capacity for independent living
    - Economic self-sufficiency; and
  • Reflects the person’s need for special interdisciplinary or generic services, supports, or other assistance that is of lifelong or extended duration and are individually planned and coordinated—except that such term, when applied to infants and children, means individuals from birth to age five, who have substantial developmental delay or specific congenital or acquired condition with high probability of resulting in developmental disabilities if services are not provided.

Grants

Council accomplishes the activities in its five-year plan by awarding grants for specific projects. The Council, its staff and grantees are partners, working together toward successful accomplishment of the goals in the State Plan. Current projects, as listed in the State Plan for Developmental Disabilities are outlined on the following pages, giving project title, description, project agency and federal funds for one year.

PROJECTS

Advocating for Public Policy Change

Grassroots advocacy activities to improve and enhance services and supports for people with developmental disabilities and their families is the focus of these grants. Advocates in seven areas of the state will educate policymakers about state level issues, such as reduction of waiting lists, Olmstead initiatives, restructuring of the family support system. And Ohio’s participation in Medicaid Buy-In. Each of the following sites receives $25,000.

The Ability Center of Greater Toledo, Toledo
The Advocates for People with Developmental Disabilities, Dayton
The Arc of Hamilton County, Cincinnati
The Arc of Portage and Summit Counties, Akron
Brain Injury Association of Ohio, Dover
Cerebral Palsy Association of Ohio, Columbus
HAVAR, Inc., Athens

Autism Spectrum Disorder Service Guidelines

This project will support the work of the Ohio Autism Task Force. The Task Force developed the guidelines to serve as a tool for providers and families in making informed decisions about children and young adults with ASD. The guidelines are intended to provide recommendations, based on current knowledge about "best practices," to parents, service providers and educators for the assessment of individual needs and delivery of appropriate services and supports for children and adolescents with ASD/PDD. Council believes the Autism Spectrum Disorder Service Guidelines will promote a better life for individuals with ASD/PDD and their families. The project will oversee the printing, marketing, outreach and distribution of the ASD Guidelines to all interested parties to include educators, parents, policymakers and post-secondary educators.

Bellefaire JCB, Shaker Heights, $50,000

Benefit Innovators- Project WISE

Designed to help people with disabilities, family members, and service providers gain increased access to information regarding federal and state employment benefits, the project will develop training materials on federal and state employment benefits, Social Security Work Incentives, Medicaid Buy-In, and systems advocacy.

Project will demonstrate innovative ways to use federal and state benefits to allow individuals with significant disabilities to have more income and assets. Successful methodologies and recommendations for activities to change systems will be presented in a final product.

Cerebral Palsy Association of Ohio, Columbus, $136,550.

CHOICES

Self-advocates will provide individuals living in large congregate settings with the necessary information about community living to allow them to make informed choices about their residential living options. Self-advocates will identify and address the concerns of family members, whose relatives are residents in large congregate settings. Project will hold roundtable discussions. Project completed a monograph including barriers and recommendations.

The Arc of Ohio, Columbus, $176,000

Collaboration, Coordination, and Outreach to Unserved and Underserved

Council staff and members will continue to collaborate with other councils, committees and interagency bodies in order to advocate for council's positions on public policy issues, and to strengthen and expand services and supports for individuals with developmental disabilities and their families. Through their involvement with over 100 other entities, Council staff and members also gain information about the service system which assists them in their planning and advocacy.

In addition, Council is addressing the issue of those who are unserved and underserved by reaching out to build connections between diverse communities and service providers. Those who are unserved/underserved include individuals from racial and ethnic minority backgrounds, disadvantaged individuals,individuals with limited English proficiency, individuals from un-served geographic areas, and specific groups of individuals within the population of individuals with developmental disabilities.

Coordinated Planning for Informal and Formal Caregiving- Safe Harbor

This project is assisting parents over 60 years of age to develop a long term care plan, which includes an emergency plan. The project is currently working with more than 20 families.

PLAN of SE Ohio in conjunction with Elder Care of the Ohio Valley, Athens, $40,000

Development and Replication of a Regional Dental Program for People with Disabilities

Individuals with developmental disabilities in previously unserved and underserved areas of Ohio will receive continuous, appropriate dental care resulting from the development and/or replication of regional models of dental care for patients with unique needs. The project director will facilitate and implement a plan to introduce the model throughout Ohio and encourage replication.

Community Action Organization of Scioto County, Inc., Portsmouth, $100,000

Disability Awareness Across the Medical Continuum

This needs assessment will produce recommendations for funded health initiatives related to people with disabilities: getting needed health services, improving health programs, and training people in health services.

Karla M. Lortz, Delaware, $25,000

Educational Options for Children

To maximize the educational potential of children with disabilities, parents will be assisted in understanding the educational options and rights available to them. The project will provide services to parents of preschool children to expand their knowledge, skills and acquire tools to establish an informed advocacy base that will effect positive systems change in the education system in schools. The grantee will report numerical changes in inclusionary practices of the districts involved and compare to baseline data collected at the onset of project.

REACH (Referral & Educational Association for Child Health), Portsmouth, $50,000

Employment Collaborative

This project is a collaborative effort involving Governor’s Council on People with Disabilities, U.S. Department of Labor: Office of Disability Employment Policy, and the National Organization on Disabilities. Programs in the project include:

  • Business Leadership Network- businesses in Ohio will explore methods to more effectively recruit and market the talents of job applicants with disabilities;
  • Youth Leadership Forum- students with disabilities will receive leadership and career training; and
  • Start on Success- high school students with developmental disabilities will have opportunities for paid internships. Families and school personnel provide training, guidance, coaching, and supports in all aspects of career planning.

Ohio’s Governor’s Council on People with Disabilities, Columbus, $50,000

Empowerment Fund

The ODDC will enable individuals with developmental disabilities and family members to serve on policy and program planning bodies and to gain knowledge and skills by attending conferences and meetings. A committee of Council members will approve applicant requests in accordance with the policies governing the fund.

Ohio Developmental Disabilities Council, Columbus

Family Support Act

The project continues DD Council’s initiative to increase statewide availability of individualized supports to families of children with developmental disabilities. The project will support the passage of the Family Support Act and establish the Family Support Board. The Family Support Act will establish a simple, streamlined application/eligibility process, create a single point of entry to find out about, apply for and evaluate supports and link data bases among agencies to generate unduplicated information.

The Family Support Board will change the support system for families in Ohio by developing a family-centered and family directed system, coordinating efforts with local and state agencies, making recommendations to the Governor and the General Assembly, testing and piloting initiatives, and reviewing any other issues with regard to development of a family support system.

Ohio Legal Rights Service, Columbus, $50,00

Fannie Mae/HomeChoice: Homeownership for People with Disabilities Project

Low income people with disabilities and/or their families will be assisted in renting or becoming homeowners. The goal is to provide homebuyer counseling services to 12 or more low-income individuals with disabilities and/or their families who want to become homeowners. In addition, six homebuyers can receive down-payment assistance. Project is using Housing Trust Funds and multiple cash matches from both corporations and nonprofit organizations to meet the goals of the Special Needs Homeownership Assistance Program.

LADD, Inc., Cincinnati, $15,000

Funding for the Arts

Emerging artists with disabilities will move to a higher level of artistic career development. Funding can be used for any artistic discipline to assist artists with disabilities develop the materials and skills necessary to begin marketing their art for profit. Funding is available yearly for public and private nonprofit and for-profit organizations and individuals in Ohio that have a commitment to promoting artists with disabilities.

Recipients are selected each year, $12,000

Improving Quality Assurance for Services and Supports - My Voice, My Choice Project

This project will continue to pilot the provider report card statewide. This card allows customers with disabilities and their families and/or guardians to have a voice in stating how they feel about the services they receive and to assist them in making an informed choice about services and supports.

Norwich Consulting Services, Ltd., Columbus, $90,000

Infant and Toddler Mental Health

Mental health assessment tools for children, age birth to five, at risk for developmental disabilities or who have developmental disabilities, will be evaluated. The project will assess the tools’ overall effectiveness and promote their use by professionals through education, training, and technical assistance. In addition, the project will work to raise the awareness of programs and service providers who work in early intervention and infant child care. The project will advocate, first at the local level and then expanding to all of Ohio, for an effective and coordinated service delivery of mental health services to assure better outcomes for children.

Children’s Resources Center, Bowling Green, $50,000

Medicaid Buy-In Study and Advocacy

The Ticket to Work and Work Incentives Improvement Act (TWWIIA) of 1999 expands a Medicaid option under Section 4733 of the Balanced Budget Act of 1997. This provision gives states the option of providing Medicaid health insurance coverage to working individuals with disabilities who do not qualify for Medicaid under existing rules. People who are eligible may "buy-in" to Medicaid coverage by paying premiums. In April 2001, Steven Howe completed the study, "Projecting Enrollment in a Medicaid Buy-In Program for Ohio."

To further this effort, this project will:

  • Update and expand Steven Howe’s study. A budgetary impact analysis will be completed to estimate revenue side effects of a Medicaid Buy-In program in Ohio. Enrollment projections will be expanded from three years to six years using refined methodology.
  • Inform Ohio public policymakers by using the study and other advocacy efforts of the need to begin the Medicaid Buy-In program in Ohio.

Steven Howe, Cincinnati, $31,000

Offenders with Developmental Disabilities Partners in Justice Project

The Action Committee will continue to address statewide issues relating to offenders with mental retardation and developmental disabilities and to educate individuals working in the justice system and the field of mental retardation on the critical issues facing both systems and to identify ways in which the systems can work together to resolve some of those issues. This Action Committee will continue to advocate and develop interest and support (financial and political) for creating a treatment center designed to:

  • Provide treatment for individuals who have not committed an offense but have a high probability of committing a serious offense (sex offense, arson, murder).
  • Reduce risk to the community.
  • Reduce likelihood of incarceration.
  • Work with correctional facilities in Ohio to develop and implement appropriate and effective programs.
  • Work with correctional programs and local county boards of mental retardation and developmental disabilities to develop effective transition programs to prepare individuals to re-enter the community once they have been released.

Partners in Justice, CCDDD, Cincinnati, $25,000

People First of Ohio

Self-advocates will learn to advocate for themselves to have the same rights, responsibilities, choices, and lives as other community members. They will learn how to be active in making Ohio’s communities more inclusive of people with developmental disabilities. Each year, project will set up at least four new chapters and provide self-advocacy training.

People First of Ohio, Mt. Vernon, $109,000

Personal Assistance Services Cooperative

This project will continue to establish a Personal Assistance Services Cooperative as a pilot in Cleveland, Ohio. It will be owned and operated by people with disabilities and family members.

LEAP Attendant Training Program, Cleveland, $25,000

Professional and Teacher Development Task Force

The project will staff a task force whose members will be a statewide representation of educational stakeholders, including members and staff of the Children’s Issues Committee of DD Council. The task force will ensure that educational needs of students with disabilities are met in Ohio’s implementation of No Child Left Behind Act and the reauthorization of IDEA by ensuring there is language in the State’s Consolidated Application Plan and its guidance to the local education agencies to meet the educational needs of students with disabilities with respect to professional and teacher development in all educational settings.

Project will educate public policy makers at all levels (state and federal legislators and local officials as well as the Ohio Board of Regents, boards of directors of colleges and universities and local school boards) as to the need for better-prepared professionals and teachers to educate students with disabilities in all educational settings.

Memorial Inc., Cincinnati, $50,000

Public Awareness- AXIS

Project will increase awareness of the capacities and needs of people with developmental disabilities and their families, and issues related to the provision of services and supports for these individuals. Activities will include: production of a quarterly DD Council newsletter and a variety of awareness materials; presentations and trainings; participation in organizations; developing and implementing DD Council’s public relations plan; producing Council’s Annual Conference, and maintaining a toll-free help line.

AXIS Center for Public Awareness, Columbus, $238,000

Public Awareness- OPI

Council will be cosponsoring the annual media and awareness awards luncheon hosted by Ohio Public Images. Awards recognize outstanding efforts by the media, organizations, consumers, and private entities to create positive awareness of people with developmental disabilities.

Project also will create a poster contest encouraging students to recognize their classmates with developmental disabilities as full participants in school and community activities, and will revise selected products developed under previous DD Council grants.

Ohio Public Images, Inc., Toledo, $25,000

Self-Determination in Employment: Employment Outcomes and Micro-enterprise

Innovative and unique ways to access employment for individuals with disabilities will be demonstrated by expanding the Employment Outcome project, piloted in Delaware County, to all counties in Ohio. People with disabilities will receive "Challenge Grants" that can be used either to pay an "Employment Agent’s" commission that is based on earnings of the person with a disability or to start a business. The person with a disability and those he or she chooses to help will be in control of their resources.

Robert Morgan, Delaware, $100,000

Solidarity Conference

Scholarships will be provided for 220 individuals with developmental disabilities to attend the Solidarity Conference in 2005. Solidarity is Ohio’s largest conference planned by and for people with disabilities. Participants gain knowledge and skills from workshops, keynote speakers, health and wellness fairs, technology displays, and exhibits. Many agencies, corporations, and individual contributors also support the conference.

Disability Network of Ohio- Solidarity, Inc., Dayton, $25,000

Technical Assistance and Training Benefiting People Who Have Mental Retardation or Other Developmental Disabilities, with Co-occurring Mental Illness

A Center of Excellence will be developed as a base for extensive training, technical assistance, and mini-grant incentives to counties throughout the state. The ODDC, the Ohio Department of Mental Retardation and Developmental Disabilities, and the Ohio Department of Mental Health are funding this initiative.

Wright State University, Dayton, $75,000

Volunteer Credentialing Program for Direct Support Professionals- PATHS Project

Professional Advancement through Training and Education in Human Services (PATHS) will develop and implement a volunteer credentialing program for direct support professionals working with people with disabilities in selected regions of the state. Currently, it is being implemented in Hamilton, Cleveland and Toledo, Ohio.

Activity will include identifying specific problems and best practices related to the recruitment and retention of direct support professionals to provide in-home family support. Grantee also will develop an advocacy plan to address recruitment and retention issues related to providing in-home family support services.

Ohio Alliance of Direct Support Professionals, Columbus and Ohio Provider Resources Association, Columbus, $75,000

Ohio Developmental Disabilities Council
8 East Long Street, Suite 1200
Columbus, OH 43215

(800) 766-7426
(614) 466-5205 voice
(614) 644-5530 tty
(614) 466-0298 fax
ddc.ohio.gov

Design and photography by AXIS Center for Public Awareness

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