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  1. TITLE: Rehabilitation at the Lifespan Conference, July 21-22, 2003: Integration with Education; Integration with Medical Care; and Neurotrauma, Disability, Aging and Employment
  2. Speakers: Joan W. Carney, M.Ed, Kennedy Krieger Institute; David C. Good, M.D Wake Forest University- School of Medicine; Jeffrey S. Kreutzler, Ph.D., Virginia Commonwealth University, (Katherine Cargill-Willis 3/22/05)
  3. Kathy’s Note: This report attempts to summarize three PowerPoint slide presentations. Unfortunately, the slides are the only things that were available. I used Google to define words and fill in the gaps. Although I defined several of the terms, I was not confident in comparing the variables especially in the ‘rehabilitation’ section. Finally, I did not arrange the paper by speaker but by subject.
  4. Rehabilitation:
  5. Perceptions: In the U.S. there is a relative lack of truly integrated medical and rehabilitation care models. Attitudes towards people with disabilities and the lack of “visibility’ of rehabilitation medicine are possible barriers to the integration with medical care. Medical students had less positive attitudes towards people with disabilities than the average person and male students were more likely to hold negative attitudes.

    Medical Programs: Of the 126 accredited U.S. medical schools; eighty had Accredited Council for Graduate Medical Education programs in rehabilitative and physical medicine residency programs. This is compared to 117 neurology programs, 152 orthopedic surgery programs, 390 programs in internal medicine and 497 family practice programs. The complex network of “levels” of rehabilitation care, from rehabilitation hospital, to skilled nursing facilities, to home health programs, may be a barrier to integration with medical care. “Levels of care” are defined by the location of service, the types of service provided, the intensity of services, type of patients/clients served and the philosophy of the program. Finally, there may be confusion regarding the roles of individual physicians or physician specialties, in providing medical and rehabilitation care in different care settings.

    Economic Aspects: Many traditional primary care physicians are unwilling to manage complex care for relative low reimbursement. The recent changes for inpatient rehabilitation and skilled nursing facilities create a disincentive for medical procedures, diagnostic testing and expensive medications. CMS has a variety of payment systems, which also may be a disincentive for providers.

    Rehabilitation Services After Acute Hospitalization: After a person leaves the hospital, there are multiple levels of care that can be used in different ways and in different sequences. The lack of research makes it difficult to compare the effectiveness among levels of care.

    Question Concerning Integrating Acute, Post-Acute And Chronic Services For High Risk Populations:

    Who should manage health care for people with chronic disabilities?

    Traditional primary care physicians?

    Rehabilitation physicians?

    An integrated medical plan including both?

    The availability of “combined specialty” trained physicians is low. There are two demonstration projects that integrate rehabilitation with primary care for people with disabilities:

    • Boston’s Community Medical Group Model program,
    • Rehabilitation Institute of Michigan’s Model Program,

    Can people with disabilities use the Program of All-Inclusive Care for the Elderly model?

  6. Stroke: Most people who have a stroke in the U.S. receive post acute rehabilitation services in rehabilitation hospitals, skilled nursing facilities (SNF) or through home health agencies. Approximately 20% of people receive additional services provided by a second post-acute provider. When comparing similar people who had a stroke, those who were admitted to rehabilitation hospitals were more likely to return to the community and recover Activities of Daily Living (ADL’s) than those admitted to nursing homes. People who were in a Sub-acute nursing home were more likely to return to the community than people in a traditional nursing home. There are significant differences between a 1993 RAND Report on the Health Care Financing Administration and a 1996 report written by Lee, J.H et al., on the progress of Medicare recipients who had a stroke.
  7. The 1993 Rand Report: According to this report, 16% of Medicare recipients who had a stroke died in the hospital; 54.4% received no post-acute care; 10.6 received care in a SNF; 13.2% received care in a rehabilitation hospital or unit; and 26.3% received home health care.

    The 1996 Lee Report: According to this report, 73% of Medicare recipients who had a stroke received either post-acute institutional or ambulatory rehabilitation care during the first six months; 16.5% were admitted to inpatient rehabilitation hospital; 23.4% were admitted to a SNF one of more times; and 35.5% received home health services.

    Second Post-Acute Stays: Of those who used a rehabilitation facility as their first post acute provider, 47.2% had a second post-acute stay; of those who used a skilled nursing facility as their first post acute provider, 23.4% had a second post-acute stay; of those who used a long-term hospital facility as their first post acute provider, 22.6% had a second post-acute stay; and of those who used a home health agency as their first post acute provider, 0.08% had a second post-acute stay.

    Stroke Units: There is evidence from Europe that people improve better in stroke units, a facility the integrates medical and rehabilitative practices, than people in SNF, and costs 50-64% less. The effects of stroke units are early and long lasting. These units promote early mobilization and prevent secondary conditions.

    The Copenhagen Stroke Unit Study: Findings show the relative risks of initial death, poor outcome, and 1-year and 5-year mortality were reduced by 40% in patients treated in stroke units compared to general medical wards.

    1996 European Helsingborg Declaration:

    • Patients with stroke should be cared for in a dedicated stroke unit;
    • Rehabilitation should be initiated early after stroke and all patients should have their needs assessed by an interdisciplinary team;
    • Interdisciplinary stroke units including both acute and rehabilitative care have shown improved outcomes in Europe;

    U.S. Data: In the U.S., regulatory and payment systems have largely prevented the development of similar programs:

    • The percentage of stroke survivors admitted to rehabilitation hospitals and units varied from 10% in Florida to 31% in Houston
    • The percentage of patients admitted to a SNF varied from 14% in Newark to 41% in Minneapolis-St. Paul
    • The percentage of stroke survivors receiving home health services varied from 19% in Minneapolis-St. Paul to 57% in Miami.

  8. Neurotrauma , Disability, Aging, and Employment Measurements of Traumatic Brain Injury (TBI):
  9. The Glasgow Coma Scale (GCS): The most widely used scoring system used in quantifying level of consciousness following traumatic brain injury. It measures eye response, verbal response and motor response.

    The Disability Rating Scale (DRS): The scale is intended to measure general functional changes over the course of recovery, tracking an individual from coma to community. The first three items are very similar to GCS, eye opening and communication. The last item is employability. The maximum score a patient can obtain on the DRS is 29 (extreme vegetative state). A person without disability would score zero.

    The Functional Independence Measure (FIM): A nationally recognized tool for measuring outcomes of rehabilitative care. It consists of 18 items and measures a person's actual performance of basic activities of daily living.

    Stably employed: employed at all three follow-up intervals.

    Unstably unemployed: employed at 1 or 2 or 3 follow-up intervals.

    Unemployed: unemployed at all three follow-up intervals.

    Predicting Job Stability after a TBI: The objective of the study was to examine job stability moderating variables and to develop a post-injury work stability prediction model.

    The Numbers: There were 186 adults who had a TBI between the ages of 18 and 62. They were followed-up at intervals 1, 2, 3, or 4 years after the injury.

    The Results:

    Stably employed: Forty-four people were stably employed

    Unstably unemployed: Thirty-six people were employed at 1 or 2 or 3 follow-up intervals

    Unemployed: Fifty people were unemployed at all three follow-up intervals.

    The study found that unemployment levels rose from 14% pre-injury to 71% post-injury. Others report similar rates of unemployment after a TBI ranging from 55% to 78%, while some researchers documented much lower levels of unemployment, ranging from 10% to 34%. Differing definitions of employment help contribute to the widely varying return-to-work rates report by different brain injury researches.

    Determining or Predicting Factors of Employment:

    Of those who were predicted to be employed, 79% were stably employed; 19% were unstably employed and 2% were unemployed all years.

    Of those who were predicted to be unstably employed, 27% were stably employed; 63% were unstably employed and 10% were unemployed all years.

    Of those who were predicted to be unemployed, 10% were stably employed; 24% were unstably employed and 67% were unemployed all years.

    Driving: Of those who drove their own vehicles, 63% had stable employment; 27% had unstable employment and 10% were unemployed for all three years. Of those who relied on others for transportation, 10% had stable employment, 27% had unstable employment and 58% were unemployed all four years.

    Days Of Unconscious: The mean was 12.39; for people who had stable employment at was 4.67 days; for people who had unstable employment it was 8.25 days and for people who were unemployed all four years, it was 20.57.

    Days In Acute Care: The mean was 25.11, for people who had stable employment it was 13.95 days; for people who had unstable employment it was 20.86 days and for people who were unemployed all four years, it was 32.98.

    Days In Rehabilitation: The mean was 33.2 days: for people who had stable employment it was 21.62 days; for people who had unstable employment it was 33.54 days and for people who were unemployed all four years, it was 53.70.

    Admission GCS: The mean was 9.11; for people who had stable employment it was 8.61, for people who had unstable employment it was 7.74, and for people who were unemployed all four years, it was 7.51.

    DRS At Rehab Admission: The mean was 8.11; for people who had stable employment it was 10.81, for people who had unstable employment it was 13.27 and for people who were unemployed all four years, it was 16.59.

    DRS After One Year: For people who had stable employment it was .27, for people who had unstable employment it was 1.92 and for people who were unemployed all four years, it was 3.83.

    FIM At Rehab Admission: The mean was 12.39; for people who had stable employment it was 65.38, for people who had unstable employment it was 53.30 and for people who were unemployed all four years, it was 38.96.

    FIM After One Year: For people who had stable employment it was 123.5, for people who had unstable employment it was 121.18 and for people who were unemployed all four years, it was 111.58

  10. State of Pediatric Rehabilitation: Life is a therapeutic activity and pediatric rehabilitation therapy is probably best delivered in the context of life. Thus, school and home becomes the therapeutic environment for a child. Although many believe schools offer rehabilitation services, current policy doesn’t provide for rehabilitation in educational settings. The definition of pediatric rehabilitation widely varies from state to state, leaving children unevenly served. The recent trend is to reduce benefits with the inherent tendency to assume children should be dependent on guardians.
  11. Section 504 of the Rehabilitation Act of 1973: Programs or activities receiving federal assistance must provide “regular or special education and related services… that are designed to meet individual educational needs of handicapped persons as adequately as the needs of non-handicapped persons are met.”

    Special Education’s Related Services: “Transportation and such developmental, corrective and other services as are required to assist a child with a disability to benefit from special education.” Related services include: speech therapy, recreation therapy, early identification, parent counseling and training, transportation and mobility training.

    Assistive Technology Devices and Services: Any item, piece of equipment or product system, whether acquired commercially off the shelf, modified or customized, that is used to increase, maintain of improve the functional capabilities of a child with a disability.

    Who Is Receiving Related Services in Schools:

    • 2,871,966 children with learning disabilities are receiving services;
    • 1,089,964 children with language impairments are receiving services;
    • 614.433 children who have mental retardation are receiving services;
    • 470,111 children with emotional disturbances are receiving services;
    • 112,993 children with multiple disabilities are receiving services;
    • 71,671 children with hearing impairments are receiving services;
    • 71,422 children with orthopedic disabilities are receiving services;
    • 254,110 children with other health impairments are receiving services;
    • 26,590 children with visual impairments are receiving services;
    • 65,424 children with autism are receiving services;
    • 1,845 children with deaf-blindness are receiving services;
    • 13,874 children with a traumatic brain injury are receiving services and;
    • 19,304 children who are developmentally delayed are receiving services.

    Goals for Rehabilitation

    • Restore function;
    • Maximize potential of functional ability;
    • Train or retrain to reach normal developmental levels; and
    • Short-term goals

    Goals for Related Services:

    • Educationally relevant;
    • Assist a child to benefit from instruction;
    • Assist a child to achieve maximum function in a school setting;
    • Improve function as an adjunct to cognitive processing received in classroom; and
    • Long–term goals

    Service Delivery Models for Rehabilitation:

    • Inpatient
    • Outpatient in clinic
    • Rare programs that integrate therapy in school or the community

    Services Delivery Models for Related Services: In the past, pull-out therapy was popular, but now there are increasing trends toward integrating therapy in the community and indirect therapy.

  12. Research Priorities:
    • Examine long-term employment rates of people with disabilities;
    • Identify characteristics of successful people with disabilities;
    • Identify the role of non-behavioral characteristics;
    • Identify employment alternatives that foster productivity;Identify the nature of work environments and support systems that lead to work success;
    • Determine what types of conditions are receiving related services in educational settings, how much and whether they also receive medically based outpatient services;
    • Study the efficacy of various service models for pediatric population;
    • Study the efficacy of specific interventions and the relative intensity of interventions;
    • Investigate competencies of educational personnel delivering related services to deliver therapy with rehabilitation goals;
    • Investigate the competencies of traditional pediatric rehabilitation clinicians to design rehabilitation goals pertinent to the educational and home environments;
    • Compare outcomes in different care settings for matched populations following stroke and hip fracture;
    • Study the effects of new rehabilitation payment systems on utilization of rehabilitation services;
    • Create models of integrated primary medical/rehabilitative care for persons with chronic disability; and
    • Evaluate the integrated medical/rehabilitative systems of care (stroke unit model) in the U.S.

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